Nightly News | May 09, 2013
>>> our making a difference report tonight is about two young friends, one of whom is facing a challenge. working together they have accomplished something that would be remarkable for any grown-up, never mind a 6-year-old. our report comes from nbc's chelsea clinton in los angeles .
>> reporter: this is a story about best friends . jonah has a rare genetic disease . dylan is his good friend.
>> really, really good friends.
>> no, we're not really, really good friends. we are really, really, really good friends.
>> reporter: jonah has gsd. glycogen storage disease type 1-b.
>> >> if the weather is hot blood sugar crops . if they play too much his blood sugar drops.
>> reporter: ten times a day he has his blood sugar checked. his only treatment --
>> just corn starch that you buy at a regular supermarket. this keepses my son alive.
>> reporter: every three hours jonah is fed corn starch through a tube. gsd has no cure. so best buddy dylan wrote a book to help find one.
>> that is a chocolate bar !
>> reporter: that's the boy's code word for the coolest, the best, the most awesome. they sold the book first at the local school fair. then " chocolate bar " went national.
>> we had to do another printing. people wanted to be a part of the magic.
>> they think the friendship is amazing. they are rooting for jonah .
>> we have this amazing child who has taught us a lot about life. i mean, there is a reason he's here. i think he's my hero.
>> reporter: " chocolate bar " raised $200,000 for research.
>> when i entered the field there was little hope for these children. with this help we'll make the next step and find a cure.
>> reporter: that's dylan 's goal. $1 million to find a cure.
>> how unbelievable would that be in a 6-year-old could help cure a rare disease ?
>> i like to help my friend. that is the biggest chocolate bar .
>> reporter: chelsea clinton , nbc news, los angeles .