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A diagnosis of Alzheimer’s can be daunting for both the patient and family members. The first step is to learn about the disease -- how it affects the brain, how it progresses. Patients and families might next want to find out what resources are out there to help out.
Listed below are the websites of organizations that offer education, aid, and information on new research on the disease, as well as those that are fundraising to support Alzheimer’s research.
The Alzheimer’s Association: The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research. Covers all aspects of the disease.
National Institutes of Health’s Alzheimer's Disease Education and Referral Center: National Institute on Aging’s site covers wide range of Alzheimer’s topics from symptoms to research to caregiver issues
Health and Human services Alzheimer’s site: Government site covers Alzheimer’s topics and links to other organizations.
Centers for Disease Control and Prevention – Alzheimer’s pages: CDC site provides concise description of the disease and its fallout.
Alzheimer’s Drug Discovery Foundation: ADDF is a fund-raising organization that focuses its funding entirely on preclinical research and early-stage clinical trials involving new drug targets that hold great promise but may not be far enough along in the drug development pipeline to receive financial support from the pharmaceutical industry or other partners.
Mayo clinic: how to help the caregiver: Printable webpage with advice on how to help caregivers.
Mayo clinic: Alzheimer's caregiving: How to ask for help: Printable webpage suggesting ways caregivers can ask for help.
Mayo Clinic: Alzheimer's: Consider options for long-term care: Printable webpage advising patients and families to develop a long term plan.
Fundraising and activist organizations:
Hilarity for Charity: Website for event started by Seth Rogan and others to raise money for Alzheimer's research and awareness
Bright Focus Foundation (formerly AHAF): BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer's disease and macular degeneration.
US Against Alzheimer's: Site for activist organization dedicated to finding a solution to the Alzheimer’s epidemic by 2020.